Tuesday, September 16, 2014

Mastectomy day & expanders

I had quite a collection of bracelets before the day was over.
So today I am nearly four weeks out from my bilateral mastectomy (meaning both of my boobs were removed). I just want to record a few memories from that day.

  • We, meaning Andrew & I, and my parents, went first to Ellis Fischel for some imaging stuff and onto the Women & Children's Hospital here in CoMO. The last time I lived here, this was Columbia Regional Hospital, but I guess the University of Missouri bought it. They seem to be doing a lot of that these days. 
  • Anyway, my initial appointment went fine. I was injected with radioactive dye (radioactive! Jamie loved that idea), which hurt like doo-dah. Then I was directed to a narrow bed, raised up in the air, and photographed to make sure the dye was doing its work. 
  • Then my caffeine headache kicked in and it really was the worst part of the day. MY BOOBS WERE CUT OFF AND THE WORST THING WAS NO COFFEE. I couldn't have anything to eat or drink anything and my actual surgery wasn't scheduled until 12pm. I was so cranky I almost forgot to be terrified.
  • I just want to take a brief moment to note that, at age 45, I still cannot work my television remote. 
  • And so if the worst thing about a bilateral mastectomy is the caffeine headache beforehand, I think it's safe to say that things went pretty well. Namely, the tumor that was initially discovered via 3D mammogram & biopsy in Washington, PA was all the cancer that my awesome surgeon, Victoria Wu, and her compadres, found. Nothing in the lymph nodes (in the end, they took 4). 
  • If you don't remember, the tumor was in my right breast. I was somewhat gratified to learn that I did have precancerous cells in my left breast because at first I wanted a lumpectomy, then a single (unilateral?) mastectomy. But nothing malignant, which I am so happy to hear. Maybe the bilateral mastectomy prevented cancer from showing up on the left side--maybe not. But I am happy with my decision, which is the goal that survivors I have talked with tell me to work towards.
  • So sometime in the evening, maybe 8pm, I awoke with a huge weight on my chest and looking up at my smiling, sweet parents and husband. It was like I was a newborn baby. Hello there!
  • Turned out that the reason for the huge weight was mostly bandages, but not only. To reconstruct my breasts, my first set of foobs were inserted after the mastectomy. 
  • These Phase One foobs are called expanders and they are plastic shells that feel like a plate of armor on my chest. "Mommy," Jamie said when he tried to hug me, "your milkies are hard. Why?" Observe:  


From http://reference.medscape.com/features/slideshow/breast-reconstruction.
This thing is inside me. It is indeed hard. And sometimes they hurt. 
  • These nifty gadgets were inserted beneath my pec muscles and I now look and feel like a football star in training. Every week or so I go to my plastic surgeon, who is also amazing, and he or one of his residents, or both, take a side and inject me with 60 ccs of saline solution. It doesn't hurt, but you need to sit up slooooowly after they do it, or you might pass out. Just saying. 
  • And at the same time that they inserted the expanders, Dr. Colbert (his name is Stephen Colbert, for reals, and I have a little crush on him) and his team puffed me up like a cancerous mushroom with all kinds of good fluids, which then drained out through four (4) of these, two sprouting from my each of sides like water balloons:

JP Drains. Empty thrice a day and record volume. I got the first 2 out after a week and the last 2 after two weeks. 

  • So I guess officially I was an arachnid for about 2 weeks. Hmm.
  • Once the drains were out and I was off the Percoset-Valium combo that made getting my boobs removed, peeing in a plastic bucket, and generally losing a lot of self-control bearable, I went back to work. For 2 whole hours. That was a day of victory, Wednesday, September 10, 2014. And then I took a three-hour nap afterwards. 
That is all for now. More to come re: lymphedema: yea or nay? and CHEMO. Yep. There it is.

11 comments:

  1. Thanks for the update! The pictures of the various medical instruments were enlightening.

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  2. Thanks for posting about this so we can have some idea what you are going through. You rock!

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  3. Sarah and Rachel, thanks much for your feedback. I should also note that the expanders have magnets in them so that the needle to fill them up hits its mark on the first try. Another detail for science-engineer lovers.

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  4. Thank you so much for keeping us posted. I so wish I could activate the WashPA casserole tree on your behalf. Love you much.

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    1. Me too, but it's so great to hear from you. Tell the fam hello from me. And Jamie!

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  5. Noel, I wish I could be there to help you. I feel useless, just like I did on the day of your surgery. I'm so glad that you're okay. I miss you! Hugs!

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    1. Denise, it really, really helps just hearing from you. Also, if you ever need a place to stay when you come to visit Nathan and his family, we have a guest room!

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  6. I'll just echo the others:Thank you for this, Noel. It is invaluable to everyone who cares about you to read your thoughts about what you have undergone. All my best to you and your boys!

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    1. Will, thanks so much. I will keep writing...

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  8. LOL re the caffeine, Noel! You are a brave and funny woman! Keep on! Sara from SLA

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