It is surprising to me how much chemo has taken over my life. I thought, when I heard that it would be every other week, that it would probably occupy me on treatment Thursdays and maybe the weekends after, but the reality is more like this:
Thursday--treatment
Friday--Tuesday or Wednesday--treatment side effects
So really, I am spending every other week preparing for, having, recovering from, or managing chemotherapy.
That is an effing lot of time on chemotherapy, especially since Andrew is still in the hospital.
So I guess it is inevitable that sometimes I feel that rather than living my life and just getting chemo here and there I am actually living in a succession of chemo days, really, colored by the following truths:
1) Eating a little protein all the time is very helpful;
2) I have lost and gained the same 9 pounds every cycle;
3) Steroids are probably the reason for the gaining and losing;
4) I have lost my taste for coffee and I really don't care.
Things I do care about:
1) Feeling trapped at home;
2) Making sure Jamie's life is as normal as possible;
3) Asking for help even when I don't want to do it.
Yesterday I called my wonderful sister-in-law and asked her, in a hiccuping, snotty-crying kind of way, if we could just drop in at, oh, dinner time. Not that we would be eating, no. I eat way before dinner time and I would be bringing Jamie's dinner with me, but still. Just dropping in around dinnertime because I felt like crap.
Definitely not something I would have seen myself doing even a month ago.
So of course she said yes and Jamie got to play Portal with his Uncle Andy and Kerry gave me hot chocolate and talked to me until I was calm. And then she drove her car behind mine because mine's "check engine" light came on all of a sudden as I drove out to her house. As I drove I reflected on the necessity of asking for help. Even demanding it. A good thing to have learned during my chemo days.
Oh, Noel, I wish I were there to help you in some way. I had no idea that Andrew is in the hospital! Prayers and more prayers for all of you.
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